Parents and their families struggles!!!

Don't judge... These are heart felt stries!!

God Bless You all who realize how much these

families do to help their child get well

Stories That Will Touch Your Heart

"The Painful side of life"

I don't usually add something like this to a website but this I just thought all of you should read... This letter was written from one of The grandparents in out grandparent's group, and I have to tell you her words left me speechless, as she had spoken every word that most of us living this life feel! There was just no more to be said after this, and reluctantly I ask if I could use this letter on the website so that those who don't live our life can actually read what goes through each of our minds each day! We don't call this life a burden, we call it a blessing, it is not something we would have chosen but we were chosen for the job, and each of us in our own way have made the best out of it!!

Dear*****.
   The parents here have given so much advice to you, there is not much more to say, but my heart aches for you sweetie, And my main concern is that you are so angry at ******Honey, if I could say one thing to you, it would be FORGIVE, because no one can ever say anything or blame him more than he does himself! Believe me, I know! As you know,  Sweetie I was the main person who was supposed to be looking out for ****, and I got busy and I can't honestly say that I kept an eye on him... We put too much trust in the floaties, and although through all my kids and my sister's and brother's kids the floaties never failed us... It weighs heavy on my heart daily, and I sometimes think that a lot of people don't jump on board who could and donate the big money because they have no sympathy for us as parents/ grandparent who screwed up, and let this tragedy happen... For some reason I believe that many people can't look past the accident to see how and what the family goes through! They fail to remember the times they left the bathroom for a few minutes to do something, or left a bucket of water on the floor that their child could have fell into or a toilet cover open... There are dangers lurking everywhere when it comes to our Children and grand children... No one will Love
*** *more than his daddy, and believe me you need him! And more than that he needs you! If your marriage was strong before, you can build it back up... Yes you will have days when you can't help but be angry, very angry, and resentful, I even ask myself sometimes if losing ????**** completely would have been better for****and ******. And then I see my baby holding her baby boy, and loving him, and dedicating her whole life to him... She was on the go from morning till night trying everything she would hear or read about, and then when we hit the 5 year mark, and all the thing we hoped for were not happening it was again a time of remembering just what we lost... You know what I remember most about that day, is **** loving his fake bugs and making mommy and gramma eat them... We would make yucky faces and pretend to act like they were really yucky, and **** would just laugh so far... Oh I know ****blamed us and he was so angry, but he stood by our side because he knew how much pain we were already suffering! And poor ***, he lost his son and the most precious thing in his life... And before he got to the hospital, as he pulled in the driveway **** was in the helicopter with **** and they were just leaving the ground! They didn't have a chance to talk, or anything... Although It was probably best because he was in so much pain, he may have done something he would one day regret!
  I think that it is so important that parents write their feeling down and what this tragedy has done to them and the pain that will never lessen! I feel it be important that the parents pain and story should be written and publicized on the website even if names are changed to protect the families... It would be much more effective for people who know what happen and the aftermath of it all... Most people are not educated when about the aftermath of near drowning.... We thought for sure with a little time since ****didn't die, he would come back to us the way he left us! I know it is hard to write about these stories, but it is the only way people cannot only get educated but also see the pain and suffering the families go through! **** you are strong, and to tell you the truth, I hope that your therapist will put you on  Wellbutrin, because it has been my life savor and so many other parents! On bad days I will take a Colonapin when I am having a really bad day! I usually only take the colonapin at night, but I need it once in awhile during the day just to stay sain! My guilt with my arm being broken an all that I can't do with and for **** and****makes me feel so guilty, because I have also felt responsible  for the life my daughter has to live and how much pain she is in!
  Work on you first and then work very hard on your marriage to keep it strong! You can do it sweetie you are tough!!! But until your ok... Nothing  else can be! Well Sweetie know Our thoughts and prayers are with you... And we love your family and the support you give the Foundation at the fundraiser's... If you need anything sweetie I am just a phone call away!
                                                Our love to you all ******... And keep your faith in God because he can get you through all of it! Get in touch with ****and the two of you get together, make some plans to get out once a week for lunch! XOXOXOXOXXO TO YOU AND YOUR FAMILY! Always Peggy
www.hugs4ndc.com
www.prayforseth.com
 

 Dear Marcia,

This is so wonderfully written, I think you have just about said everything any of us could be thinking, and more than that it comes straight from the heart! I was wondering if you would mind me removing all names and put this on the website! I don't know if you would want your name on it but either way whatever your wish is, and I also will not even consider putting it on there with out your 100% approval, but this is the kind of thing that people should be reading to know what this has done to our families! You absolutely left me speechless as you so often do, because you speak the words my heart so often feels! God Bless you my dear sweet friend... And Thank you for being in my life!!! I love you all always, Peggy

 
You know , I'm not sure which is more tiring, the physical or the mental.  I think that you adjust to the physical part of taking care of a HIE child.  And in time you adjust mentally to having a special needs child.  Sometimes the mental takes over and that's hard to dig yourself out .  At least it is for me.  I get to the spot of wondering what Joey would have been like if he had been normal.  Sometimes I get stuck there.  Those are the times that I do rely HEAVILY on God and you, my family, and my few friends that I have.  Sometimes it isn't even the big things that can send you over the edge.  It's those little day to day things.  The straw that finally breaks the camel's back so to say. 
   Your daughters are loosing their minds.  Let's face it what sane person has to face the daily issues that our kids have to face.  Like I have said before how many "normal" families put their kids to bed at night and wonder if they are going to be alive when they wake up in the morning.  I still have that fear even though Joey is doing well.  I know that at any time due to the damage done to the brain that it can switch off his breathing or heart. No they don't hate you.  They may resent the fact that when you walk out that door you can resume a somewhat "normal" life.  Their lives will never, ever be normal again.  No it's not your fault what happened , neither is it her fault but being the parent/s you can't help to blame yourself.  You should have done this or that, you shouldn't have seen this doctor or that doctor.  They can't predict the future and the cold hard fact is that they did see that doctor, loaned that truck, walked in to get ready for a party.  Not one of us got up on that day planning how things would turn out cause if we did it sure the hell wouldn't have turned out like it did.  But we still carry the blame in our hearts. In our minds, in our souls.   It's something that stays in the back of our minds,stewing,  churning, waiting to rear it's ugly head.    We KNOW in our minds it's not our fault, what we FEEL in our hearts at  times are two completely different things.  So yeah the resentments are there.  Not at you in particular but at life in general.  And let's face it, A landslide rolls down hill and if you happen to be down hill your gonna get it.  IT'S NOT YOU...it's anger and rage, helplessness and hopeless,  it's grief and sadness. It's second guessing if what your are doing is correct and the thought really ,! ! really , really,  deep down in inside of you if it was right for you to fight for your child to live, knowing that just as deep as that thought is that what you did you would never change it for the world.   You name it it's there. It messes with your head and at times it's really overwhelming.
  You know it says something about all of you as parents.  Your still there plugging away and staying with them. Supporting them and loving them in ways people with "normal" children/grandchildren will never ever know about.  You are truly  the embodiment of unconditional love.
You are my hero's.
Love, Marcia


 

The silent killer; Seconds can make a world of difference in whether a child survives after falling into a pool

ORANGE COUNTY, Calif. — When a child slips underwater, there's no thrashing about or calling out for help as seen in the movies.

Within 30 seconds, the child loses consciousness. Within four to six minutes, he or she suffers irreparable brain damage.

Within 10 minutes, he or she can be brain-dead.

"If the child is not breathing by the time we get there as a result of CPR or other things we cannot understand," said Orange County Fire Authority Capt. Paramedic Bill Lockhart, "the soul of the child -- the thing that brings joy to the parents -- is long gone."

"It's very quick, very silent," said Michelle Feczko, health and wellness coordinator at Children's Hospital of Orange County in Orange. "And in most cases, adults are around -- each of whom thinks that somebody else is watching the water." 

These are the calls for help that no one ever wants to have to answer. These are the calls that haunt tough old firefighters and seasoned cops, filling their memories with the faces of all the children they saved -- and those they couldn't.

The seductive tug of water is proving to be especially deadly this year for Orange County's youngest, who see only the magically shimmering surface but never the threat underneath.

With temperatures heating up and the year not even half over, six Orange County children ages 5 and under have accidentally drowned -- already matching the total for all of last year, according to the Orange County coroner.

Last Tuesday, the party balloons and the tables piled high with platters of barbecue blurred together as Orange County sheriff's Sgt. Rob Gunzel raced through the Villa Park house he was summoned to with the report of a child not breathing. He pushed past the people crowding the living room and burst into the back yard. That's when he saw her -- tiny, drenched and not breathing, her skin already gray.

It was a birthday party and the pool was crowded with kids and pool toys. No one noticed 4-year-old Aurora Pruitt slip under the water. No one noticed until everyone got out -- except Aurora.

The chaos surrounded Gunzel but he tuned everything out -- except her. He had to do everything right -- for her.

When Sheriff's Deputy Rick Johnson rushed into the back yard his heart sank. "Not again."

"When you get those calls, honestly, you don't want to be the first one there," Johnson said, emotion choking his voice. "But you do everything to get there as fast as you can because you want to help." 

No time to think about the Mother's Day 10 years ago or of the 2-year-old Anaheim boy who drowned in a backyard pool and the desperate cries of his parents. Johnson went to work, trying to breathe life back into little Aurora. Gunzel did the compressions.

"C'mon," Gunzel said. "She was such a little girl."

Paramedics arrived. Johnson scooped Aurora up in his arms -- she was so tiny -- and laid her down on a table. A frantic trip to the hospital. Hours later, Aurora died. 

"There are really no words of comfort," said Lockhart, who has responded to many drownings in 29 years as a county and city paramedic. 

With so many people around, how could this happen? But it does -- and it can happen to anyone. All it takes is a second -- a tiny distraction. Some pool owners have taken to hiring professional lifeguards at $10 to $15 per hour for their backyard parties, according to firefighters and water-safety experts.

It's a good idea, but not necessary, experts say.

"This isn't really a lifeguarding issue," said Eric Bauer, lifeguard battalion chief for the Newport Beach Fire Department. "You just need to have someone available to grab a kid who falls in the water. The bottom line is rapid intervention."

Julie Kinley of Orange couldn't possibly hold her 1-year-old son Jake any tighter or shower him with enough kisses. 

Just seconds were the difference from being able to hold him and losing him forever when she stepped away to answer the phone and riffle through some papers earlier this month.

In that second -- a second parents take for granted every day -- he crawled out a screen door and fell into their backyard Jacuzzi. Kinley screamed -- and dropped the phone. 

She jumped in and fished Jake out of the water. She thumped him on the back, and water gurgled out. She called 911. Four firefighters burst in. Kinley collapsed on the floor. They spent the night in the hospital -- but Jake was OK.

"The guilt set in," said Kinley, a mother of two. "No one was blaming me, but all I kept thinking was he shouldn't have been in there. I shouldn't have had to call you guys."

Now Kinley can rattle off drowning facts and figures. And she tells everyone she comes across -- because she doesn't want to read about another drowning -- or a close call.

"I'd see these drowning stories on TV and I used to think -- where were the parents?" Kinley said. "But now I know how quickly it can happen -- just like that."

The Orange County Fire Authority is in the midst of their annual drowning prevention campaign -- reminding residents that drownings are preventable. For more than a decade, CHOC has promoted a water-watch program in which designated adults wear tags around their necks.

"It's a symbolic thing -- when they wear the tag, they're accepting the responsibility of being in charge of the water," said Feczko, of CHOC, which distributes hundreds of the free tags every year to Orange County residents who can request them by calling the hospital.

"One's person's eyes should always be on the water," Feczko said.

Not every call ends in tragedy. 

There are the successes -- when a mother pulls her baby from a bathtub and does CPR -- preventing brain damage -- or when a baby sitter grabs a child from the edge of a pool. 

The children grow up maybe not ever fully realizing how close they came to death -- or that they are what drive the rescue workers to keep trying, because lives can be saved.

"You have to appreciate the moments because, despite all our prevention efforts, we are distracted for that moment and we lose the opportunity for more moments to cherish," Lockhart said. "Moments matter -- in so many ways."

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